Episode 12 - Connecting Individuals with Rare Disease to Clinical Trials: Nina and Jake Wachsman from Know Rare

The Safe Harbor podcast is a show for parents of children with disabilities and people who love them. Your host is Theresa Bartolotta. This episode features an interview with Nina and Jake Wachsman, a mother and son team who started Know Rare, a company that supports individuals with rare diseases by helping them find clinical trials.  Know Rare also provides information to support individuals and their families as they navigate the unique world of having a rare disease. Nina and Jake combined their professional talents with a personal mission to help individuals and you will find their story inspiring. The Know Rare website also has a terrific blog with stories about individual families, resources about living with a rare disease, and so much more.  We will feature Lauren Will, an amazing poet, contributor to Know Rare, and mom to a son with a rare disease, in an upcoming episode. It is not to be missed! Here's a link to Know Rare: knowrare.org

Update: Episode 8 featured an interview with Dawn Barclay, author of "Traveling Different: Vacation Strategies for Parents of the Anxious, the Inflexible, and the Neurodiverse", a really helpful book for families planning vacations with their loved ones. The book has been released as of August 15, 2022. You'll find this book to be full of great tips and resources to help your family explore the world. Here's an Amazon associate's link to purchase the book - if you use this link I get a small commission that helps defray the cost of the podcast - https://amzn.to/3R15d93

 You can also find the the link to purchase the book on theresabartolotta.com under Books or Podcast, Episode 8. 

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